Our Visit to Children’s Mercy

Thank you for praying for Katie, and for us as we seek answers for her.

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Our trip to Kansas City was productive and fun. Papa and Gramma Byrd came with us and took the younger kids to Crown Center and other adventuring while Jonathan, Katie, and I went to Children’s Mercy for her appointment.

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We were astounded by Children’s Mercy. The entire atmosphere was different than that at any specialist’s office we have been to. It was a lovely, encouraging difference.

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The Hematology/Oncology (HemOc) clinic is its own little world at Children’s, including having its own air filters! Dr. Hetherington (aka Dr. Max) spent about two hours sitting down with us and seeking to understand Katie’s story. It was extraordinary. We learned a great deal from her, just in talking over different possibilities. She seemed to be forming a multi-tiered list of culprits to investigate.
Katie broke her vials-drawn record on Friday at 13 vials. Some of those labs have come back, and others haven’t yet. We also went for an abdominal ultrasound, which confirmed that her spleen is enlarged (something that fits with various parts of her puzzle).

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After we left Children’s, we explored Union Station, drove around KC a bit, then enjoyed the Plaza light before heading home. It was neat to build some fun memories together in the midst of our concern about Kate.MVIMG_20171222_154800 MVIMG_20171222_154703 MVIMG_20171222_153902 IMG_20171222_154423 IMG_20171222_150342 IMG_20171222_150315 IMG_20171222_150020 1222171722a 1222171720b 1222171719a 1222171719 20171222_171425
As of today, Dr. Max’s plan is to present Katie’s case to the HemConference next month. She is wanting to get input and ideas from other hematologists. Labs that have come in so far from Friday have still not given any easy answers. So, more patience is in order, but we are encouraged to be working with Dr. Max, and trusting in our Sovereign God’s wisdom and goodness.
Please continue to pray with and for us. Thank you!

J&L

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